| October is Celiac Awareness
Month. Celiac (pronounced sillyyak) Sprue is a hereditary autoimmune
disease that has been increasingly diagnosed over the last few years.
Once thought to be quite rare, it now is now found at the same ratio as
diabetes. The latest figures indicate a prevalence of 1 in 133 people
have the disease, but I’ve read that they believe it is probably about
1% of the population.
Gluten is the protein in all wheat
varieties, rye, barley and all the possible products from those grains,
such as barley malt. When a celiac sufferer consumes gluten, the small
intestine becomes inflamed and the villi — those hair like projections
from the wall of the intestine — collapse. The villi absorb our
nutrients and contain most of our immune cells. Years of poor nutrient
absorption takes its toll on the body and can cause any numbers of
problems for the celiac sufferer.
The “celiac iceberg [is] being uncovered
today”, says Pete Green MD, director of the Celiac Disease Center at
Columbia University in New York City. In his recent book Celiac
Disease: The Hidden Epidemic, Green says that the depth of the impact
that this disease can cause is now coming to light. Celiac may actually
be the underlining cause of many medical conditions such as
infertility, peripheral neuropathy, ataxia or balance and motor
coordination problems, epileptic seizures, migraines, depression,
dental enamel defects, autoimmune liver disease, other autoimmune
diseases such as Sjogren’s Syndrome, and non-Hodgen’s lymphoma.
Just about any chronic digestive problem
might be reason to suspect celiac. Heartburn, bloating, cramping and
soft stools are some of the more common symptoms; but conversely,
constipation might be the problem for others. One usually assumes that
celiacs are very thin, but those who are overweight might just as
easily have the disease.
Some people with celiac have skin
involvement. Dermatitis herpetiformis is often mistaken or dismissed as
eczema, psoriasis, rash, hives, infected insect bites, stress-induced
non-specific dermatitis or even labeled as recurrent herpes. These skin
eruptions can occur anywhere on the body, though the medical books say
they appear at the elbows and knees. The eruptions occur in the same
place and are mirrored on the opposite side of the body. They can cause
such intense itching that the person feels they could scratch
themselves to the bone. A skin biopsy taken next to the site of the
lesion by an experienced dermatologist is the way to know whether you
have this form of the disease.
Unfortunately, there are still doctors who
tell their patients that they will out-grow this disease. This is so
wrong. For unknown reasons, some patients will stop exhibiting the
troubling symptoms and be declared “cured,” only to have the damage
progress until they risk developing cancer.
There is no cure for celiac. Only strict
adherence to a gluten free (GF) diet will manage this illness, but even
that is no guarantee of immunity from lymphoma. Celiacs have an 80%
higher rate of this form of cancer than the norm.
Our front end manager, David Jimenez, says
that one of the most common questions from new customers is “Where are
the gluten free products?” And, according to our trade magazines, the
GF food category is the fastest growing sector in the food industry. If
there ever was a “good” time to be a celiac, it is now. The choices are
no longer the tasteless cardboard breads of yesterday. The variety just
gets better and better. My favorite bread is Sami’s Flax and Millet
bread. However, it is made in a non-GF-dedicated facility, which may be
of some concern for those who are very sensitive. It is, however, well
tolerated by all the long-time celiacs I know. My favorite cake and
brownie mixes are from Namaste, which are on sale this month. They
taste so good that even nonceliacs can’t tell the difference.
The Co-op has a lot planned around Celiac
Awareness Month this year. Our new front end floor manager, Amy Pagano
RD, is a registered dietitian with expertise in celiac disease. She
will be giving two lectures during the month about the disease and
about the grains that are acceptable for consumption. We’ll be having
local author Elizabeth Barbone sign her book Easy Gluten Free Baking on
Friday, October 19 from 12 to 2 pm. Karissa Centanni, our in-store
educator and the head of our demo program, has declared that every
Friday will be Gluten Free Friday. We will be preparing GF offerings
from scratch, as well as from the numerous mixes we sell.
Honest Weight will be starting a special
monthly gluten free sales flyer that we will email to any who wants to
sign up. We have a sign-up sheet at the service desk. The flyer will
include all GF bulk, grocery and vitamin specials, as well as
announcements of the next “How to Shop GF at the Co-op” tour and what
we plan to demo on Fridays. The grocery department has created a 4-foot
section of packaged GF products and one freezer door’s section of
frozen options. The bulk department has moved all GF items to the top
shelves, so there is less likelihood of contamination. Although we now
have these two sections, please be aware that there are still many
other GF products in the store, integrated into the categories they are
a part of.
Always be sure to read ingredients before
purchasing. The new federal labeling laws have gone into effect, so
labels must now reveal the source, for example, of food starch.
Starting this year, labels on all manufactured products must specify
whether they are made from corn or wheat. There is a grace period,
though. So anything made last year or earlier won’t have this
distinction. It is always imperative that one read the ingredients when
you are a celiac.
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